is the diagnosis today.
http://www.mayoclinic.com/health/epidermolysis-bullosa/DS01015 (I can't get that stupid html link thing to work!)
We spent most of the day in the hospital yesterday after waking up fevering and with a red swollen foot.
A chunk of skin missing from a plug biopsy, a shot of Kenelog, and several medications later, I am back in the hotel room where the internet is my best friend and my worst enemy.
I can facebook and laugh with friends, family and well wishers, or I can spend the day looking at horror stories caused by the awful auto-immune disease that's I've just been diagnosed with that has no cure.
So far its been about 50-50...
For those of you who need a painted picture, three weeks ago, I was fine, and had one small blister on mt right foot. Day after day I was progressively worse and eventually (today) I am in a wheelchair, unable to put clothes on, shower, or fix my hair by myself. I can't walk, or grasp things, but I DO still have use of a few fingers on my right hand. (which explains my one fingered typing of the blog!)
I was prescribed too many different medications, and I think I might have had a reaction to one of them, which would explain a type of epidermolysis bullosa called, Stevens-Johnson Syndrome. One day I'm fine, the next day, I'm completely dependent, in a wheelchair, and unable to fasten my own bra...its that bad.
My outlook remains good. I think if I sit about and sulk, I'll turn into a mean, old grump! Don't want that, so I'll happy and try to convince myself that my entire hand won't blister and burn!!! At least I can still type though eh?!